It's only a four year all clear post.

I just can't seem to let the 24th October go by without some kind of comment. Four years is simultaneously a lifetime ago, and scarily recent. I haven't banged on about it so much this year, but it is still very much in my thoughts. A lot has happened since that day, yet I can't help dwelling on it. It feels oddly lonely that it still means something to only me.


Today is also the first day of my first contact as a self enjoyed grown up, so I have lots to distract me.


Happy brain day to me.

Next chapter.

I've only flipping gone and done it - I am officially, and voluntarily, unemployed. Soon to be self employed. This may be what's known as a midlife crisis. Eek.

People often ask me if having kids has changed me. I mostly say no, I'm still me underneath, just more tired and a even more bedraggled, if that was ever possible. But I'm starting to notice that actually I have changed. I'm not so sure it's down to having kids, or even braingate, so much as just getting older.

I often find myself not giving much of a shit about things that would have previously bothered me. Like sitting in a pub on my own. Or having clean hair. I mean *not* having clean hair... what's clean hair? But at the same time I have become weirdly focussed on things that I care about.

Nowadays, I care about my children and spending time with them. But a lot of what I really like doing with them is expensive. It's sitting around with our friends in cafes and pubs and groups where they jump around and exhaust themselves. It's getting pizza for lunch and going to the London Transport Museum. It's buying comedy mini clothing and brand name trainers. (Guilty).

So I need to work. Not just to pay for all that stuff, but also to keep me sane. I love being useful at things and adding value, but only some of the time because I really, really want to see my children at least three days out of the week. Ok, four.

Having initially found my employer wasn't too keen on me only working three out of five days, I focussed on finding a way to go it alone, as a contractor. My plan was to earn a shed load of money - full time if I needed to - on an astronomical day rate, then take some time out of work to dally around in the cafes of Camberwell. So I gung-ho-style handed in my notice.

THREE MONTHS down the line, and I have finally left.

I have always been the most risk-averse person I know, except for Dad, so I'm not quite sure how I managed to convince myself to do this, and why I'm not more terrified. I have changed. The things that matter to me now, matter more than anything has ever mattered, and that makes the risk worthwhile. I am more confident, more willing to go for what I really want and genuinely excited that things are about to be very different. (And I'm also a little bit terrified...)

Hit me up if you need any freelance writing or project / change management doing :)

A question of identity.

I've been thinking about this for ages, but without any real conclusions or a spare minute during the day, I haven't quite got to writing it down. I'm going to start now and see where it goes. Bear with me!

Before tumourgate, it's tempting to think that I used to be this set person, just waiting for my life to be turned upside down. And now that it's happened I'm somebody else. Someone who has been through it and changed and now I'm me. But in reality it wasn't like that. It wasn't as if my life was uneventful up until that moment. The things that happened in the previous life were just as massive to me then, because I didn't know that in comparison to what was coming, they were pretty insignificant.

Identity - by which I mean how I feel about myself - has always been a bit fluid. For a long time I felt as if nobody knew the real me, the one I kept hidden because surely if anyone did know they wouldn't like me. The worst insult growing up was always "nobody likes you". So simple. 

I suppose that how I identify myself is dependent on others around me. My sister is a brainbox, always has been (she's not so hot on remembering punchlines, though) and so I always felt quite stupid. Being the youngest probably didn't help with that. My handwriting was always messier. I couldn't run, draw, read as well as her. My hair was shorter, straighter, she had better clothes and more friends. I felt like the little sister who can never catch up - she'd always moved on whenever I got there.

When I got to A Levels I realised maybe I wasn't stupid as such - just not a natural academic. That was the first time I remember my actual self identity changing. But it's happened a lot of times since, when I think about it. 

Being older is way better. I'm one of those "everything gets better in your thirties" people, definitely not one of those "school is the best years of your life" people. Since being 30 I have enjoyed life much more and I believe that is in no small part down to being happier with myself and confident enough to let people really know me. I'm happier with my identity.

Telling people I've had a brain tumour is really strange. It has this kind of fizzly silence just after you've said it that people just stare at. A tumour is bad enough, but the brain element is what makes it mysterious. The black box of humanity. I read a great quote once: If our brains were simple enough to be understood, we wouldn't be smart enough to understand them. (Incognito by David Eagleman, it's brilliant). Brains are scary. A friend of my dad had a brain tumour when we were little and I was astounded that he was still alive. I thought it was definitely something you died from. 

It still doesn't really feel like I had that. I've never really identified as someone with a brain tumour. Maybe because it was over really fast, and maybe because as soon as it was over, the impending Alfred took all my focus. Or maybe it's just a reaction to extreme stress, my brain has rejected it. 

What is strange is that other people identify me by it. I'm the one that had the brain tumour. Any new people I meet now, it's a big thing to explain - when do I mention it...? And when I meet people who I already knew, I get the question. How are you? They're not asking how I am, they want to know about the brain tumour. Really though, how are you? 

And in that instant, I finally do identify as a brain tumourer. 

I am, technically, a mother. I have a baby, that I grew! And have fed and clothed and washed and carried around for nearly 11 months. He is my baby and I am his mother. But I don't really feel like one. I'm not old enough for starters. When we're together it's obvious that I'm a mother, but what about when he isn't there? Do people know I have had a baby? Do I even remember I've had a baby. Erm...

The question of identity had been brought more into my thoughts through motherhood than brain tumouring, but really the same principles apply. At first, when in the throes of shock, there are clear physical signs. When the signs have gone and you can choose which version of yourself you want to show the world, it is all about how you want to be judged.

I'm about to start work again after a long time off and some huge life changes. I don't know my new boss or anyone on my team. How are they going to see me? Who will they think I am based on what they know about me? And will that change my identity, and how I see myself? 

Glam.

This is a ridiculous post. You'd almost think I was a proper girl, if you hadn't met me. Anyway, I am super chuffed that I can now french plait the front of my hair. It is long enough to actually french plait.

A hair milestone! It certainly makes it clear that I am not a 12 year old boy, although it saddens me that 12 year old boys don't generally have the pleasure of a french plait in their hair. Poor Alfred doesn't know what's ahead of him, I originally wanted to be a hairdresser (that was before I discovered space men) and always planned on using my children to fulfil that missed dream :)

Grow hair, grow! I would be grateful if everyone could do an encouraging hair growing dance for my head. Thanks.


Such a ridiculous post, yesterday tea, today hair. Possibly trying to put off thinking about the post I should really write...

A nice cup o'tea.

Well. Something enlightening has happened. I am enlightened. 

Despite working in dubious bistros, restaurants, cafés and pizza huts for many years in a previous life, serving all variations of hot drinks to the Great British public, I never fully thought about the meaning of "decaf". I know, I'm an idiot. 

Decaf tea! I love tea! At age four, my grandad gave me some heavily sweetened tea, much to my mum's disgust, and I've loved it ever since. 

Trouble is, I've always associated it with migraines. In the desperate search for a trigger it seemed obvious, the only caffeine I consume. There was never any evidence, but a growing 'just in case' mentality which left me scared stupid to even LOOK at a cup of tea. 

Until now WOOHOO, decaf tea! It tastes... just like tea. My sugar intake is just about to go through the roof, I'll just put the kettle on. 

The unexpected.

When I was pregnant I had a book that told you what developments the baby was going through week by week. Each week I read the relevant bit and wondered. That's the only pregnancy / baby book I've looked at though, I shunned them all when he was born.

Being what some might call a control freak, I felt like I was expected to fail at being a parent. Things are impossible to plan, they said. And I do like a plan. So my plan (haha) was to empty my mind of expectations and just bumble along. See what happened.

So far that has worked out really well. It's always news to me when people tell me how much a three month old 'should' be sleeping. (Or eating, pooing, weighing, rolling, laughing, focusing, batting things, meh). I have no idea how much he sleeps, he just does it when he feels like it and so far that has fitted in quite luckily with when I feel like it. 

I like having no normal to compare him to, we just do what works for us. And so having no expectations has worked, in that sense. (I did read one paragraph that told me if I failed to get him on a strict schedule by 12 weeks he would grow up unable to hand in homework on time. I think he may have inherited that from his parents though already. That book went in the actual bin).

But what's funny is the expectations I had about myself that have turned out to be way off the mark.

Firstly, boobs. It is baffling to me (at this point in my life) how boobs are considered in any way sexually attractive. They are clearly functional (and really, not very attractive) things, how did I never consider this before? I had assumed I would find it incredibly embarrassing breastfeeding in front of people. My friends' husbands, or my brother(s) in law(s) especially. But it's mad how I just don't care. I need to feed the baby, and this is how he gets fed. 

The day before I had him, I remember thinking I would never be comfortable with it. I'm generally the one at the beach in a full head to toe outfit in case someone gets a glimpse of unsightly flesh. But the day I was released from hospital, the hour I was released in fact, I sat on the sofa at home facing the bay window onto the street with both boobs out, just not caring. Who would have thought?

And then there's work. I've always liked working and being useful to people. I know it's like a thing that people go off and have a baby and then suddenly they don't want to come back to work. Eye roll. Typical. Extending maternity leave, then going part time and before you know it they're off again having aNOTHer one. Eye roll.

So I'm thinking about extending maternity. I'd genuinely expected to be different. I love working, and I do miss it. But I love Alfred too and he won't be this little ever again. Work will always be there. Argh I'll just stop trying to explain it, you either already have a kid and understand, or you don't and you won't. It's just annoying that I'm so predictable. 

And worst of all, the other day I caught myself in a pub showing someone a video of my baby. That is not cool. (It is brilliant though, he does four massive farts in a row). Not cool.

I've never been much of a fan of babies in general really, except for my nieces. Pretending babies are cute, when in fact I find most of them a bit funny looking, is just tiring. And a bit patronising. I hoped that I wouldn't find Alfred funny looking, and I don't - he's the best looking baby of them all. Obviously. What I didn't expect was that I would now find all babies cute. That must be some kind of nature thing to make you carry on caring for them when you've had no sleep for months.

But overall I think I didn't really expect to be any good at this. The truth is I'm really enjoying it and Alfred seems to be happy enough too. Things have really changed around here (I'm just about to put the third wash on today) - I would never have believed it of myself. We're actually doing ok.

Bah humbug.

Being kind of Jewish, we didn't have Christmas when I was growing up. We had Hannukah (or Chanuka etc) instead, which was great, actually. I remember it as a really cosy idyllic family moment when it's dark outside and the fire is roaring in the hearth and we're all sitting around together. I'm sure it must have happened like that...

Anyway, I remember vividly the scorn I felt each January on returning to school. There was an annual competition to see who had the best Christmas presents. A bike? Just for Christmas? A telly? We didn't even have a telly and you got one just for you, for your bedroom? A video player?!

I told myself they were spoiled brats and materialism couldn't bring you happiness. So I told myself.

Throughout my university years I never went home for Christmas. I stayed behind and worked for double pay at Pizza Hut trying to guilt customers into bigger festive tips, and fed my friends' pet rabbits while they were away. I had a brilliant time.

Although I had no interest in Christmas, apart from the Christmas television schedule (I had one by now), I couldn't help feeling a self indulgent longing as I walked past houses with fairy lights and a warm glow seeping through the curtain gaps. It was mostly pretend longing though, like staring wistfully out of train windows when you're absolutely fine. I wonder how much of my life I live as if I was the central character in a film?

Fast forward to grown up years in grown up relationships - I am actually married I have to remind myself - and I finally do have a Christmas. Having done my best to resist joining in, I find myself actually enjoying the family get togethers and holidays-are-coming feeling. I love the communal cooking and the big family dinner and the stupid hats. I like sitting around afterwards with everyone, drinking wine and eating cold roasties until it hurts.

What I don't like is the presents. And here is the rant I've been building up to.

Firstly the pressure. I have been feeling it for months already and it's only just November. What the hell are we going to get everyone? The closer we get the more the panic sets in.

Secondly the guilt. What if our present doesn't match up to their present? Or what if our present totally crushes their present and they feel guilty? Either way you can't win, I feel the guilt.

Thirdly the cost. The more the panic and impending guilt sets in, the more likely I am to just buy something expensive to make up for lack of time and creativity. Cue more guilt.

Fourthly the sheer waste of it all. I would like to bet that the majority of Christmas presents go to that special unwanted present place in the sky. I'm not sure what's worse, giving a present that doesn't make the grade, or receiving one that doesn't. It's awkward. It makes me awkward. I don't know how to arrange my face.

I think I'd rather a more open system if we do have to do Christmas presents. Like a secret Santa type thing where you only buy one present for one person, and they buy one for someone else. Except it's not secret and you're allowed to confer. Wisdom of the crowds would hopefully help ensure that the present hits the mark.

Or alternatively everyone comes up with something that they want, and everyone else chips in to buy it for them. I spose the surprise element is somewhat missing though. But at least you'd get something useful, and you'd be contributing to something someone really wants. Warm smug glow.

Or what if we just all went out and bought ourselves something nice...

But this is my favourite idea: it's supposed to be the thought that counts right? So can't we just leave it at a thought? Let's all have a thought for each other and spend time together and enjoy each other. That's what I want for Christmas.


Oh and maybe a onesie.

This time last year.

A year isn't an arbitrary number of days, but a full earthly swing around the sun. After a particularly painful relationship breakdown, I had some great advice that I think is applicable to any major life change: the first full year, with each annual event, resets the normal and allows you to move on. Birthdays, seasons, national holidays and anniversaries. We can't help but compare them to previous years.

It does seem arbitrary though, 365 days. 'This time last year' is something I've been saying a lot. We didn't know. We didn't know that I had a brain tumour and we didn't know how that news would impact us and what it would mean. We didn't know we would have a baby. Everything is different now, and I can't articulate how changed I feel.

All along I have been marking the time passed since my surgery on the 24th October 2012. It has recently struck me that that date isn't as important than the one looming now. The day everything changed was much earlier. In fact I can't pinpoint an actual day, but a steady build up of days.

Oliver's birthday (yesterday), followed by a family weekend by the sea (today and tomorrow), then immediately to a couple of days in Poland for work. And that's where it all kicked off with what I thought was a migraine in a hotel lobby. I'd been feeling kind of terrible for a couple of months but I hadn't really noticed it creeping up on me.

The emails I sent to work explaining my absence throughout the following week are fascinating to read back, and my twitter feed gives a somewhat simplified version of events:

• 21st September: dark when i leave work, dark when i get up for work. hope summer starts soon.
• 24th September: business travel on ryanair isn't quite business class. not that i'd know.
• 25th September: quite enjoying working in a hotel lobby today. particularly the soundtrack.
• 25th September: a triptan, 2 pints of water, vitamin c tablets, apple juice, spoon of marmite, prawn cocktail crisps. hot water bottle. bed. die: migraine.
• 27th September: in bed with a bag of peas on my head. @omorley is singing give peas a chance and i smell of peas. not in a good way. migraine, peas off now.
• 1st October: love the nhs.

I can't quite explain the fascination I have for this annual comparison. I continually marvel at the difference to today, but there is something else too. Would I go back to a year ago? Would I choose a different path if I could? No. I have developed as a person and learnt a lot about myself. It's been a worthwhile journey.

But it seems an anniversary to make a note of in some way. I feel almost tearful at the thought of this time last year, and as if I keep banging on about it. As per the advice above, maybe I'll move on after this. We'll soon have been through every annual event and the new normal will have been set. Time to look forward rather than back.

(There is no button and you can't go back.)

Human magic.

The human body is amazing. The capacity we have to heal (physically) astounds me, and I've had more opportunity to witness this in the last year than the rest of my life put together.

Just over two weeks ago I got out of bed and walked, took my own thigh high stockings off (not as glamorous as they sound, and also not an easy feat at the best of times) and showered - less than 24 hours after major abdominal surgery. Nearly ten months ago I walked home from hospital two days after having my skull sawn open. That's mad. 

And then there's Alfred. My body grew him, from, like, what exactly? He didn't exist at all, and then a little sac existed that he would grow into, and then he slowly started to exist. And suddenly here he is, fully formed. He has forehead wrinkles, and knuckles. Already there. And he knows to rub his eyes when he's tired. How does he know that? Where there was nothing, there is now Alfred.

There are so many cliches around having a baby. I found them all incredibly dull before Alfred arrived, and am slightly piqued that many are turning out to be true. One thing that we were consistently warned about is how fast he would grow. It's incredible. His face changes daily and he has grown out of clothes already.

Before he was born I had this wonderful plan to take a photo of his face every day so that we wouldn't forget. Except I keep forgetting. I am torn between wanting him to stay this little forever and wanting him to be grown up so I know what happens to him, what he does and what he's like. It's slightly terrifying how much of a blank slate he is right now, and the thought of the tightrope we have to walk in order to give him the best launch pad. 

Either way, he is growing. At quite an incredible rate, it's like magic.

Fish and chips.

Growing up in a small village just north of Whitby on the north east coast of England, I took a lot of things for granted. I was invariably irritated by the way village life means nothing is private, by the sporadic, limited but extortionate bus service, by the lack of jobs and by the permanent freezing wind. It was easy to feel trapped and want to escape into anonymity of the big world as soon as possible. Which I did.

I left after A-levels and didn't hang around to find out the results - I knew it wasn't going to be pretty. And I moved around quite a bit before settling in London. Now that I'm here I really appreciate the things I grew up with - even if I didn't realise it at the time, it was a brilliant place to be.

The sea, on our doorstep. I love the sea and spend a lot of time trying to convince Oliver to come to a beach - any beach - with me, to smell the air and feel right at the edge of the world. The woods, also on our doorstep. We had a den, we actually had the best den in the village and it had a trap hole and an escape route and we threw poisonous berries at people who walked past. The weather, for those few weeks every summer when is was just perfect. That actually did make up for the rest of the (hurricane-like) year.

The pubs - it has been said that there are more pubs per capita than anywhere in the country, although I've since heard that said about many other places so maybe it isn't true. But anyway, the pubs were good in Whitby, for a teenager (although not the - singular - club. Unless you were 14).

And the fish and chips. I cannot believe how I took this for granted. We had a chippy in our village, and it was really good. Still is actually. Sometimes I would have a second tea from the chippy with my friend Sue. I guess I just thought that everywhere was like that. But sadly, I was wrong.

I've lived in various places abroad which could be forgiven for not having fish and chips, but also in Newcastle, Sheffield and Nottingham. Not to mention various boroughs of London over the last ten years. Nowhere can I find a decent fish and chip shop. Even at the coast, I've tried Brighton (good effort) and Bournemouth (don't even bother) and recently somewhere in Suffolk (quite good) but nothing really compares to Fuscos in Whitby. Cod, chips and scraps. With a nice cup of tea and a slice of soft buttered white bread. Seriously. What else could you ask for.

People think I'm joking when I say that you can't get decent fish and chips outside Whitby, but I'm not. I mean it. You can't.